DMD | A Father’s Fight
Shortly after my twin sons Troy and Andrew were born in 1995 my life changed forever. They were diagnosed with Duchenne Muscular Dystrophy a nasty terminal muscle wasting disease. I have watched them crawl, walk, run, and then lately decline so rapidly that they will be confined to wheelchairs for the rest of their shortened lives. I have also watched them throw a ball, ride a bike, and punch each other like most siblings do, to now not be able to lift up their arms to feed themselves. But through all this rapid change, while also dealing with just being a teenager, they remain positive and are two of the strongest bravest young men I have ever known. They are my hero’s.
Check out my film proceeds will go to help out kids with Duchenne, and also check out my local organization jettfoundation.org for much more information on this disease. Please also be on the lookout for the autobiography A Father’s Fight to be published and released in 2016.
Thank you for your support ! Mark Chauppetta
T- Shirts with a disabled edgy theme. Twin T-Shirts was founded in 2014 by my sons Troy and Andrew Chauppetta. Please show some support www.twintshirts.com
What is Duchenne Muscular Dystrophy ?
Duchenne muscular dystrophy is the most common lethal genetic disorder diagnosed during childhood. It is a progressive muscle disorder that causes loss of muscle function and independence. Duchenne affects approximately 1 in every 3500 boys, or 20,000 babies born each year worldwide. Because the Duchenne gene is found on the X chromosome, the disorder manifests primarily in boys. Duchenne affects families of every race and culture. It can occur during every pregnancy regardless of family history. Random spontaneous genetic mutation is the cause of Duchenne in nearly 35% of families affected. There are approximately 15,000 boys/young men diagnosed with Duchenne alive today in the United States.
Treatments for Duchenne
No known effective treatment or cure currently exists for Duchenne. Researchers and doctors, like Dr. Brian Tseng at the Jett Program for Pediatric Neuromuscular Disorders at Massachusetts General Hospital for Children, are searching for both treatments and cures for the disease.